Person-Centered Care Publications

Abbasi AB, Layden J, Gordon W, et al. A Unified Approach to Health Data Exchange: A Report From the US DHHS. JAMA. 2025;333(12):1074–1079. doi:10.1001/jama.2025.0068

American Geriatrics Society Expert Panel on Person-Centered Care. Person-Centered Care: A Definition and Essential Elements. J Am Geriatr Soc. 2016;64(1):15-18. doi:10.1111/jgs.13866

Baker A, Cronin K, Conway PH, DeSalvo KB, Rajkumar R, Press MJ. Making the Comprehensive Shared Care Plan a Reality. NEJM Catalyst. May 18, 2016. https://catalyst.nejm.org/doi/full/10.1056/CAT.16.0838

Bierman AS, Wang J, O’Malley PG, Moss DK. Transforming care for people with multiple chronic conditions: Agency for Healthcare Research and Quality’s research agenda. Health Serv Res. 2021;56 Suppl 1(Suppl 1):973-979. doi:10.1111/1475-6773.13863

Blaum CS. Resnick HE. Lawton D. Bowman A. A Core Measure Set For Age-Friendly Health Care Delivery“, Health Affairs Forefront, September 13, 2024. https://www.healthaffairs.org/content/forefront/core-measure-set-age-friendly-health-care-delivery

Chappel A, Cronin K, Kulinski K, Whitman A, DeLew N, Hacker K, Bierman AS, Meklir SW, Monarez SC, Johnson KA, Whelan EM, Jacobs D, Sommers BD. Improving Health And Well-Being Through Community Care Hubs. Health Affairs Forefront. 2022 Nov 29. DOI: 10.1377/forefront.20221123.577877

Dolin G, Saitwal H, Bertodatti K, Mueller S, Bierman AS, Suls J, Brandt K, Camara DS, Leppry S, Jones E, Gallego E, Carlson D, Norton J, Establishing data elements and exchange standards to support long COVID healthcare and research, JAMIA Open, Volume 7, Issue 3, October 2024, ooae095, https://doi.org/10.1093/jamiaopen/ooae095

Dorr DA, Wilcox A, Jones S, Burns L, Donnelly SM, Brunker CP. Care management dosage. J Gen Intern Med. 2007;22(6):736-741. doi:10.1007/s11606-007-0138-z

Fowler E. Brooks-LaSure C, Rawal P. Innovation At CMS: Advancing A Person-Centered Health System. Health Affairs, January 15, 2025. DOI: 10.1377/forefront.20250113.153827

Fulmer T, Patel P, Levy N, Mate K, Berman A, Pelton L, Beard J, Kalache A, Auerbach J. Moving Toward a Global Age-Friendly Ecosystem. J Am Geriatr Soc. 2020 Sep;68(9):1936-1940. doi: 10.1111/jgs.16675. Epub 2020 Jul 23. PMID: 32700767.

Jennings LA, Tan Z, Wenger NS, et al. Quality of Care Provided by a Comprehensive Dementia Care Comanagement Program. J Am Geriatr Soc. 2016;64(8):1724-1730. doi:10.1111/jgs.14251

Kuebler K, Monroe T, Ricciardi R, Westlake C, Sorenson M, Pederson J, Neft M, Mitchell SA, Daniel K, De Santo-Madeya S, Renda S, Henneman E, Bruera E. Integration of palliative care in the management of multiple chronic conditions: An expert consensus paper with policy implications. Nursing Outlook 72(2024)102273. https://doi.org/10.1016/j.outlook.2024.102273

Gottlieb LM, Hessler D, Wing H, Gonzalez-Rocha A, Cartier Y, Fichtenberg C. Revising the Logic Model Behind Health Care’s Social Care Investments. Milbank Q. 2024 Jun;102(2):325-335. doi: 10.1111/1468-0009.12690. Epub 2024 Jan 25. PMID: 38273221; PMCID: PMC11176407.

Gottlieb LM, Lindau ST, Peek ME. Why Add “Abolition” to the National Academies of Sciences, Engineering, and Medicine’s Social Care Framework? AMA J Ethics. 2022 Mar 1;24(3):E170-180. PMID: 35325517; PMCID: PMC9591153. doi: 10.1001/amajethics.2022.170.

Kelley AT, Weiner SJ, Francis J. Directly Observed Care: Crossing the Chasm of Quality Measurement. J Gen Intern Med. 2023;38(1):203-207. doi:10.1007/s11606-022-07781-1

Marulappa, N, Anderson NN, Bethell J, Bourbonnais A, Kelly F, McMurray J, Rogers HL, Vedel I, Gagliardi AR. How to implement person-centred care and support for dementia in outpatient and home/community settings: Scoping review. BMC Health Serv Res. 2022;22(541). https://doi.org/10.1186/s12913-022-07875-w

National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Committee on Integrating Social Needs Care into the Delivery of Health Care to Improve the Nation’s Health. Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation’s Health. Washington (DC): National Academies Press (US); 2019 Sep 25. PMID: 31940159.

Reuben DB, Tinetti ME. Goal-oriented patient care–an alternative health outcomes paradigm. N Engl J Med. 2012 Mar 1;366(9):777-9. PMID: 22375966. doi: 10.1056/NEJMp1113631.

Reuben DB, Jennings LA. Putting Goal-Oriented Patient Care Into Practice. J Am Geriatr Soc. 2019 Jul;67(7):1342-1344. Epub 2019 Mar 18. PMID: 30882888. doi: 10.1111/jgs.15885

Sadak T, Wright J, Borson S. Managing Your Loved One’s Health: Development of a New Care Management Measure for Dementia Family Caregivers. J Appl Gerontol. 2018;37(5):620-643. doi:10.1177/0733464816657472

Tinetti ME, Hladek MD, Ejem D. One Size Fits All-An Underappreciated Health Inequity. JAMA Intern Med. 2024 Jan 1;184(1):7-8. PMID: 37983054. doi: 10.1001/jamainternmed.2023.6035.

Schwartz A, Weiner SJ, Harris IB, Binns-Calvey A. An educational intervention for contextualizing patient care and medical students’ abilities to probe for contextual issues in simulated patients. JAMA. 2010;304(11):1191-1197. doi:10.1001/jama.2010.1297

Watson BN, Estenson L, Eden AR, Gerstein MT, Carney MT, Dotson VM, Milnes T, Bierman. Person-Centered Care Planning for People Living With or at Risk for Multiple Chronic Conditions. JAMA Netw Open. 2024;7(10):e2439851. doi:10.1001/jamanetworkopen.2024.39851

Weiner SJ. Contextualizing care: An essential and measurable clinical competency. Patient Educ Couns. 2022;105(3):594-598. doi:10.1016/j.pec.2021.06.016

Weiner SJ, Kelly B, Ashley N, et al. Content coding for contextualization of care: evaluating physician performance at patient-centered decision making. Med Decis Making. 2014;34(1):97-106. doi:10.1177/0272989X13493146

Weiner SJ, Schwartz A, Weaver F, et al. Contextual errors and failures in individualizing patient care: a multicenter study. Ann Intern Med. 2010;153(2):69-75. doi:10.7326/0003-4819-153-2-201007200-00002

Weiner SJ, Schwartz A, Weaver F, Galanter W, Olender S, Kochendorfer K, Binns-Calvey A, Saini R, Iqbal S, Diaz M, Michelfelder A, Varkey A. Effect of Electronic Health Record Clinical Decision Support on Contextualization of Care: A Randomized Clinical Trial. JAMA Netw Open. 2022;5(10):e2238231. doi:10.1001/jamanetworkopen.2022.38231

Weiner S, Schwartz A, Altman L, et al. Evaluation of a Patient-Collected Audio Audit and Feedback Quality Improvement Program on Clinician Attention to Patient Life Context and Health Care Costs in the Veterans Affairs Health Care System. JAMA Netw Open. 2020;3(7):e209644. Published 2020 Jul 1. doi:10.1001/jamanetworkopen.2020.9644

Weiner SJ, Schwartz A, Sharma G, et al. Patient-collected audio for performance assessment of the clinical encounter. Jt Comm J Qual Patient Saf. 2015;41(6):273-278. doi:10.1016/s1553-7250(15)41037-2

Weiner SJ, Schwartz A, Sharma G, et al. Patient-centered decision making and health care outcomes: an observational study. Ann Intern Med. 2013;158(8):573-579. doi:10.7326/0003-4819-158-8-201304160-00001

Winslow VA, Lindau ST, Huang ES, et al. Caring for dementia caregivers: How well does social risk screening reflect unmet needs? J Am Geriatr Soc. 2024; 1-11. doi:10.1111/jgs.19200

Selected articles from Medical Care Special Issue on Measuring What Matters Most, December 2024
Measuring What Matters Most: Considering the Well-Being of the Whole Person in Health Care Medical Care 62(12):p i, December 2024. | DOI: 10.1097/MLR.0000000000002103

Bokhour BG, Vogt D, Kligler B. Measuring What Matters Most: Considering the Well-Being of the Whole Person in Health Care. Medical Care 62(12):p S1-S3, December 2024. | DOI: 10.1097/MLR.0000000000002088

Etingen B, Cohen-Bearak A, Adjognon OL, Vogt D, Hogan TP, Gaj L, Orner MB, Barker AM, Bokhour BG. Measuring Patient Well-Being During Whole-Person Clinical Care: Lessons From the Veterans Health Administration Well-Beings Signs Implementation Pilot. Medical Care 62(12):p S57-S64, December 2024. | DOI: 10.1097/MLR.0000000000002054

Herman PM, Rodriguez A, Edelen MO, DiGuiseppi G, Zeng C, Coulter ID, Hays RD. A Perspective on the Measurement of Whole Person Health. Medical Care 62(12):p S24-S26, December 2024. | DOI: 10.1097/MLR.0000000000002047

Parr NJ, Young S, Baltich Nelson B. Assessing Whole-Person Outcomes During Routine Clinical Care: A Rapid Scoping Review. Medical Care 62(12):p S34-S42, December 2024. | DOI: 10.1097/MLR.0000000000002046

Vogt D, Kligler B, Darchuk K, Elbogen E, List JM, McMullen T, Murphy JL, Bokhour BG. Measuring the Well-Being of the Whole Person in Clinical Care, Health Research, and Population Health Evaluation: Findings and Recommendations From the XVIII Veterans Health Administration State of the Art Meeting. Medical Care 62(12):p S4-S12, December 2024. | DOI: 10.1097/MLR.0000000000002084